More than 1 million Americans suffer from chronic fatigue syndrome. Here’s what you need to know.
Imagine being constantly exhausted, like you're physically and mentally depleted for months — even years — and no one can figure out why.
![Imagine being constantly exhausted, like you're physically and mentally depleted for months — even years — and no one can figure out why.]()
This is what over one million people experience every day with chronic fatigue syndrome (CFS), which is defined by the CDC as an overwhelming fatigue lasting six months or more, plus a host of other symptoms that don't get better with rest, and get worse after physical or mental exertion.
CFS is a wildly misunderstood and complex chronic disease, sometimes also referred to as “myalgic encephalomyelitis” (ME) or chronic fatigue and immune dysfunction syndrome (CFIDS). Many patients prefer to use the term ME/CFS, because the term “chronic fatigue” can be stigmatized. However, for the purpose of consistency with current medical literature and clarity for readers who are unfamiliar with the condition, we will use "chronic fatigue syndrome" and "CFS" in this article.
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CFS kind of feels like one day you just "woke up in a fog."
![CFS kind of feels like one day you just "woke up in a fog."]()
You know that exhausted, foggy feeling you get when you have a bad flu or virus? Experts say this is how many patients describe CFS, but the difference is that this fatigue never goes away like a normal flu does.
"Besides being physically exhausted, it's also hard to think, so it really feels like your body and brain just aren't fully awake," Dr. Kevin Fleming, medical director of the Chronic Fatigue and Fibromyalgia Clinic at the Mayo Clinic in Rochester, Minnesota tells BuzzFeed Health. And sure, you can't really measure or diagnose this "fogginess" with medical testing, but that doesn't mean it isn't very real.
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It's not the same as feeling tired or lazy.
![It's not the same as feeling tired or lazy.]()
Sure, we've all experienced some extreme exhaustion after losing sleep or exercising too hard. But this is different.
"Chronic fatigue syndrome causes a profound, pathological level of physical and mental exhaustion," Dr. Peter Rowe, director of the Children's Chronic Fatigue Clinic at Johns Hopkins Pediatrics in Baltimore, Maryland, tells BuzzFeed Health. It's lingering, constant, and can make it feel impossible to even get out of bed or do simple tasks like showering or cooking.
Another thing that makes this fatigue unique is that it doesn't get better after weeks or even months, Rowe says. Actually, in order to meet the diagnostic criteria, it has to occur on its own (not from another illness) for at least six months or more. This is why people really shouldn't confuse "fatigue" with tiredness, or even laziness. "The fatigue is not a choice, it's a major impairment to these peoples' lives," Rowe says.
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And no, sleeping doesn't help the fatigue at all.
![And no, sleeping doesn't help the fatigue at all.]()
Unlike when you overdo it one day and feel energized after a good night's sleep, people with CFS are still exhausted when they wake up, Rowe says. Patients can sleep 10, 12, or even 16 hours each night and still not feel rested.
"Whatever sleep does to help us feel restored and refreshed, it doesn't happen for people with chronic fatigue syndrome," says Fleming. Not to mention, many CFS patients also suffer from sleep disturbances like insomnia or sleep apnea.
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